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It’s A Good Day Today
People often ask how Kate is feeling. “She looks great today. How is she feeling?” “She’s so energetic today. How is she feeling?” “She’s so cute. How is she...
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Turtle Turtle
Turtle. It’s my word for when I retreat into myself. It’s when I know that I am struggling and need to shut out the ‘noise’ of life. I go silent. I get quiet. I don’t return email or calls or texts....
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Feeling Included.
Bloom is a fantastic special needs, medically fragile, medically complex parenting blog from Holland Bloorview and edited by my friend Louise Kinross. (Incidentally, if you like them please consider...
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The Art of Imperfect Decision Making
A Recipe for Making Decisions How to make an impossible decision in 7 easy steps Ingredients: Information and Research Gathering of knowledge from ‘the experts and specialists’ Analysis Questions...
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Santa Love
Something important – even magical – has happened for Kate. Like any young child, she loves and believes in Santa. She has spent the past 7 years being terrified of the jolly old elf, but this year the...
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The Best Of….
In an effort to take this prolonged hospitalization day by day and moment by moment, I am working on reminding myself of the positives and good moments. Don’t get me wrong, the negatives and the dark...
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What Is Isolation All About?
As we go through the bone marrow transplant journey and are into the post 100+ days period (we are at Day 126), family and friends are wondering why they still cannot visit or come to our home for...
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A Few Thoughts About Patience
I am tired of being told to be patient. I’m pretty sure if I hear the word one more time, being directed at me in a syrupy semi-supportive/patronizing tone with a hint of caution from a person who...
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“How To Be A Good Guest”
NOTE: We have been home for just over 2 weeks from a close to 7 month hospitalization. This blog post has been sitting in my ‘draft’ since late August. It’s interesting now to read it and reflect on...
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12 months, 55 days later
Wow. What a really bad selfie. Why on earth would I post this? I am sharing it because I want you to know what devastation, loss, intense grief and sadness look like. This is me longing for my...
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